Being disabled is difficult for many reasons, one is knowing what is too difficult for me and knowing what is too difficult for others to do for me. Being in public for me is very difficult because I have to expose my disabilities and how people react to what they see can have a huge impact on me, making me shy and incredibly vulnerable in public.When I was a teenager I loved shopping at the mall and going out to dinner, but I don’t do those much anymore for so many different reasons.

  • I don’t have as much energy as I used to and tend to get tired before I’m ready to leave and while shopping I like to take my time with looking around at the options and even more time deciding on a purchase. When I get tired I become what I like to call floppy, I simply don’t have the energy to sit properly in my chair and the only place I should be is home
  • I need help so I have to bring someone along and generally it’s my husband who would much rather be at home playing video games than taking me shopping and out to dinner. This is one of those times I need to decide if it is something I should do less for me or for him, making a decision between a need and a fun past time is simple, but still is difficult for me to accept. Thank God for online shopping because otherwise I don’t think I would survive.
  • The Ear doctor told me even though I can hear just fine I have trouble focusing on what I want to hear, so if there is other noise around me it becomes very hard to listen to what I want to hear, which makes visiting while going out to eat or shopping very difficult.

My life has to be different now than it used to be, but that doesn’t mean less fun, I have family and friends who do things with me regardless of my limits. I will always be so thankful for that.

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